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Discussion Starter · #1 ·
Hi everyone,
I am wondering if anyone has a severe sensitivity to Salicylates and how you cope with it?
I recently had Ibuprofen and went into anaphylactic shock and now am extremely sensitive to Salicylates and am finding it hard to cope, so many foods are full of Salicylate
Its a vegans worst nightmare!!! Being allergic to veg

I would really like to chat with other vego's that have the same problem and how you coped with it.
Some low salicylate vegan recipes would be great too!
SV
 

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Sorry about what happened to you.
No experience with salicylate sensitivity here but here's a blog post with a recipe and other food ideas: http://fairestfeed.blogspot.com/2009...hite-bean.html

Depending on how severe your sensitivity is, you may want to double check all the ingredients to make sure you're able to eat them safely. Would it be possible to speak with a veg-friendly dietitian about the issue to help you figure out what to eat? Sorry for not being much help!
 

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Quote:
Originally Posted by Rhys View Post

Sorry about what happened to you.
No experience with salicylate sensitivity here but here's a blog post with a recipe and other food ideas: http://fairestfeed.blogspot.com/2009...hite-bean.html

Depending on how severe your sensitivity is, you may want to double check all the ingredients to make sure you're able to eat them safely. Would it be possible to speak with a veg-friendly dietitian about the issue to help you figure out what to eat? Sorry for not being much help!
Those are some interesting recipes. Very nice of you to share them. Thanks.
 

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Discussion Starter · #4 ·
Thanks for your reply and the link!
What to eat? Who knows???
Salicylates are just everywhere and the reactions are so severe!
Its a real ethical battle in my mind and with the people in my life regarding being vegan.
I hope to find a way to live with this and stay true to my ethics.
 

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Quote:
Originally Posted by sickvego View Post

Thanks for your reply and the link!
What to eat? Who knows???
Salicylates are just everywhere and the reactions are so severe!
Its a real ethical battle in my mind and with the people in my life regarding being vegan.
I hope to find a way to live with this and stay true to my ethics.
I know how you're feeling. I have a sluggish thyroid so that really impacts my diet. And I came across a doctor who claims to have a sure fired way to 'cure yourself of autoimmune disease's' by changing and really limiting your diet for 18 months. But as I read the article I realized that even if it worked, I couldn't do it because it eliminates things like beans and lentils and the protein comes from meat. So I keep my thyroid disease for the animals.
 

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Hi sickvego, I too have a problem with salicylates, and suffer from various allergies and carry an Epipen for anaphlaxis. My allergy specialist has told me I must try a diet eating only foods that contain no or negligible salicylates for a minimum of 8 weeks. I have a comprehensive list from them of the foods I can eat, and those I can't. As a vegan it is really hard, I know how you feel! They even asked me if I would consider eating meat- my answer was a big fat no, obviously! I am about to embark on the diet properly, as I only received the full list from them today, and it is really daunting. As you say, a vegan allergic to plants is a nightmare! I also have other allergies, intolerances and sensitivities that make it even harder. I can't eat potatoes, wheat or gluten to name just a few. Yet potatoes are one of the few permitted vegetables on the list- typical >.< I would love to be able to discuss it with someone in the same boat!
 

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Beanitarian
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I am not allergic but have other medical issues w/them. I avoid things with artificial flavor. Also a long list of foods. I hate that but I have little choice.
Good luck to you.
 

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Hi, I am a vegetarian (not vegan) with a mild/moderate salicylate intolerance. I strongly recommend that you find a good dietitian to try out an elimination diet. They should know about all the RPAH material (or equivalent if not in Australia) and a good dietitian will accept your dietary beliefs and work within them. I have never had a dietitian suggest that I eat meat and would not return if one suggested this. Also check out the 'Friendly Food' cookbook, published by the doctors at the Royal Prince Alfred Hospital (Australia) and Sue Dengate's 'Fed up with food additives' website and published cook books. Some of these recipies all note where eggs or dairy are included and often have recipes free of eggs and dairy that would be suitable. You may need to take multivitamin tablets while on the elimination diet but this is just temporary and a dietition will be able to recommend one suitable for an elimination diet.

Good luck and I hope you feel better soon. If you are lucky like me you will find that your intolerance isn't too bad and you can eat some moderate salicylate foods which will allow a bit more variety and nutrition in your diet. Again, the dietition will help you with how to reintroduce foods and quantities etc once you have identified the problem(s).
 

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Watch out for yellow food & pill dyes (as the dyes act like salicylate analogs and thus you might be allergic) and make sure your pharmacist knows of your sensitivity.

And dont delay in getting prescriptions sent to the pharmacy. A friend works in one and sometimes it takes a lot of time for her to find a specific medicine which is safe to give to those with salicylate allergy.

If they give you yellow pills, double check with them to make sure they didnt make a mistake.
 

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Hi Sickvego!

I am vegan and I have this nightmare!

I am actually high raw vegan...

I was high raw vegan for 2 years then went 100% for 7 months until my salicylate intolerance went off the charts.....

here is what happened....

I have always had eczema even as a baby due to salicylate sensitivity and dairy.

I did not know that until 2 years ago when I did some testing.

So I went high raw vegan, got more energy, eczema went away, acne went away, my digestion was better .... I had IBS as well.

Then I went 100% raw vegan following 80 10 10 diet and i just loved it! I have never been more satisfied with my body and my deficiencies were finally taken care of. I have never eaten so many greens before. I got really healthy! I ate huge amounts of fruit and veggies and greens. A tiny bit of nuts and seeds. That is all. My blood work was great, I was in perfect health for the first time in my life!

I was allergic to many fruits and had to avoid citruses, vinegars, tomatoes, plums, pineapple, melons and overdosing on strawberries. But that was no problem, I was still happy!

I got so healthy that I was able to eat tomatoes without having eczema! Wow! Then I made "a fatal" mistake: I had tomatoes every day, and plums and tons of nectarines (I did not know they were half plums). A month later (a month!!!) I got eczema back + total salicylate intolerance to anything that has even moderate amount! I was in hell! I got eczema after eating 1 mango or fig .... I had that acid forming in my mouth if I even tasted a peach! Everything like that tasted like the most sour lemon and the feeling lasted all day! That was too strange!!!!

I could only eat bananas, pears with no skin, greens and then I had tons of steamed veggies, sweet potatoes and some beans. 2 months later I added apples with skins on.

I do not eat anything from boxes, cans, processed, refined, coffee, alcohol, etc.

I do not use any medication, creams, sprays, or any chemical whatsoever.

My diet is limited now but I am at least keeping my health, eczema free life, high vitality, high energy, great health, physically very active lifestyle. And yes, I eat a lot of bananas and greens (smoothies) during the day. I eat about 3000 calories total.

From what I understand is that we have a bucket.... when mine was empty I was able to eat small amounts of high salicylates and the bucket was just filling up.... no reaction yet.... but because I was going overboard every day, the bucket got full and it overflew ..... my immune system went off like never before!

My goal now is to bring it back to where I was before when I could only avoid high salicylate foods and be ok with mangoes and figs and some strawberries...... I want that life back. I am working towards it. I do not care how long it will take before my body is back to the way it was, its bucket emptier. I am ok eating what I eat now because of my health and vitality benefits. I only believe in my own experience and if I feel great, look better, have more energy, my blood work is awesome, then I will keep on doing it no matter how crazy it may sound to those who do not have that experience or knowledge of.

p.s. my mother has salicylate intolerance as well. Her symptoms are sinus problems and sometimes asthma like symptom. She feels acid in her stomach even from very ripe apricots. She loves fruit and will never give it up. But she made some compromise and eats more bananas now as they are lower in salicylates.
 

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I would love some insight from you who are vegan/vegetarian with the salicylate issue...

I am a newbie to a plant-based lifestyle. I am married and we have 2 kids, a boy (3.5) and a girl (18 mo). I have two rare diseases: Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I cannot have dairy, gluten, alcohol, orange juice, and some meds without serious reactions. My son is hyperactive and has sensory processing disorder. He cannot have gluten or dairy. (We also avoid everything artificial - no colors, flavors, sweeteners, we don't do fast food and we don't eat out of boxes). My daughter has an obvious salicylate sensitivity. Plus she cannot have soy, dairy, wheat, or rice!!!! UGH!

So we are trying Feingold/Failsafe elimination diets for our kids (and me) to see if it will decrease the hyperactivity, sleep issues, reflux, crying, insomnia, etc...

BUT

I want to be vegetarian. My husband is not completely against it, but not really motivated to go that route. He is our chef - I'm the baker. I am an awful cook :/ (actually I just can't cook meat... I'm not bad with a veg recipe!!)

With our severe limitations and our complete ignorance of this lifestyle we don't know how to feed ourselves or our children. Every Vegetarian/Vegan cookbook I've found has everything we can't eat in it... and the Feingold/Failsafe recipes are few and typically contain meat... or rice (we do do quinoa).

So any tips, advice, blogs, books... ANYTHING you can offer me to help would be greatly appreciated!!

Thanks :)
 

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I'm vegetarian with salicylate, dairy and gluten intolerances. Seehope's bucket theory seems to work for me. I did the full RPAH elimination diet (http://failsafediet.wordpress.com/the-rpah-elimination-diet-failsafe/) for chemical intolerances because I was referred to a dietician for IBS type symptoms after I insisted to my GP that I was sure it was dietary. As I'm really sensitive to fragrances and cleansing products, she thought it was much more likely to be a chemical intolerance than one of the FODMAPS related issues. She guided me through it and was really non-judgemental about me insisting that I wasn't going to eat meat. Her thought was that maybe I wasn't eating meat because I was sensitive to amines.

Anyway, I managed it gluten free and vegan and it turns out I have issues with salicylates and preservatives. I never realised had sinus issues until I didn't have them anymore after cleaning out my system. I stopped watching my intake recently and then had to have a couple of days off work due to piercing sinus headaches and nausea, so I'm being very good now as it's reinforced that I have to keep an eye on it. The good thing is, as a vego, most legumes are safe so non-meat protein is readily available. My favourite recipe from the allergy cookbook is for bean rissoles. Really easy, just mash two cans of drained, rinsed beans (they suggest kidney) then add 3 chopped celery stalks, 3 chopped spring onions (in Australia, I think shallots elsewhere) or leeks, 1/2 cup of breadcrumbs (I use a really nice Orgran GF quinoa based one), 1 clove garlic and 1 egg (substitute). Mix it all together, make into patties and fry. Makes about 4. I usually don't bother with egg or egg substitute and it works fine.

Anyhoo, as well as the RPAH site - http://www.sswahs.nsw.gov.au/rpa/allergy/resources/foodintol/ffintro.html , I found an interesting webpage with some great links down the bottom the other day - http://babyfoodsteps.wordpress.com/2011/07/25/s-is-for-salicylate/ .

Good luck and I hope these help.
 

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Hi,

I have just joined this forum (2 year after the message). I am vegan and salicylate and gluten free. For those currently using this forum or read it in the future this might be useful: https://www.blogger.com/blogger.g?blogID=1449199618472564923#allposts

It is not as difficult as you think. The Friendly Foods book from the RPAH site is also useful but does not have many vegan meals.
 

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HI,
I've just come across this blog looking for recipes for my little girl. I've been vegetarian for over 20 years and my son who is almost 19 is a strapping young, healthy man that has had no dietary issues. My sister is very sensitive to salicylate which I hadn't realised until last year, we grew up thinking she was just allergic to 'green things' but I suppose that's what my family were told 30 years ago! She carries an epi pen. My daughter has had bowel problems since she first started having spoon food but the GPs told me she's get through it. At least by now (almost 2yrs old) she can eat carbs which she couldn't to begin with. I find it very hard to keep our meals interesting and varied because what she can eat is so different to what I usually cook, which is why I was looking for low sal recipes. The fed up cookbook is very meat heavy and any recipes I find are the same. She seems to have an intrinsic sense of what she can't eat but some things like baked beans she loves but they make her ill, so a small teaspoon is what she gets. If I can keep her intake lower than her tolerance level then she is ok, even with medium, but any stress, such as contact with her father makes her dip again and the courts have just awarded him contact every two weeks, it usually takes anything from a week to 3 months to get her body back to normal so that is going to be hard for her. We grow our own food which I've learned is not the best way because sals are rife in nature and the more refined foods and oils are the better since the refining process takes out the sals! To look at her, you wouldn't think she had any problems, she's keeps gaining weight and like my son is a strapping little girl. One thing that is to our advantage is that we're still breastfeeding and I worry that when that comes to an end that she won't get the extra nutrients just from her food.
I'm unable to access the blog link above. Does anyone have any links that could be helpful to me. I'd be really grateful, thank you.
 

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Me too

Hi everyone,
I am wondering if anyone has a severe sensitivity to Salicylates and how you cope with it?
I recently had Ibuprofen and went into anaphylactic shock and now am extremely sensitive to Salicylates and am finding it hard to cope, so many foods are full of Salicylate
Its a vegans worst nightmare!!! Being allergic to veg

I would really like to chat with other vego's that have the same problem and how you coped with it.
Some low salicylate vegan recipes would be great too!
SV
Hi, I am an ethical vegan and also developed a strong reaction to salicylates. My mother also has a salicylate intolerance issue. It seems that my Dad also had some reactions to salicylates. I've been vegetarian and vegan for 20 years, but the salicylate reactions only started became prevalent in my 40s. It started when I had a hurty tooth, and went overboard on anti-inflammatory foods. I became over sensitized with too much ginger tea, turmeric, and spicy foods and this resulted in my ears ringing. I get really bad tinnitus when I eat foods with salicylates. I've learned to make meals that are very lentil, rice and bean centric. This morning for breakfast, I had a bowl of hot whole grain buck wheat cereal with bananas and added rice protein powder. For lunch I had a piece of toast with red lentils. I use my pressure cooker to quickly whip up red lentils etc. You have to get creative and find some meals that work for you. If you give it time, the sensitivity decreases and you can add some items back in to your meals. There are quick fixes you can take to reduce the salicylates in your system. You can drink a little bit of baking soda in water, but you do this all the time because it affects body ph. There is a salicylate sensitivty forum online that has a lot of good tips. If you are an ethical vegan, it can be a tough road. I'm still finding my way, but it is doable with some creativity. There is definitely a genetic component to salicylic sensitivity so check with family members to see if they also have reactions to specific foods. If you have difficulty with taking aspirin, that is the key indicator of a salicylate sensitivity.
 

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Hi,

I have just joined this forum (2 year after the message). I am vegan and salicylate and gluten free. For those currently using this forum or read it in the future this might be useful: Blogger

It is not as difficult as you think. The Friendly Foods book from the RPAH site is also useful but does not have many vegan meals.
When I click on the link it brings me to creating a blog. I want to see what you shared!!!
 
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