Great news, Windigo!

You were amazingly cool and mentally sharp when you posted right after your crisis. Best of luck on your recovery.

Sounds like you have very competent doctors monitoring and treating you. Consider yourself*** LUCKY*** for that! It is so rare anymore to get competent doctors, especially when you're trying to get a serious disease under control. You are also lucky your nutritional issues are at a minimum at this point. Hopefully they can get it into remission before that changes. I think your plant based diet will help. Fermented/cultured foods and HSO/probiotic supplements also helped me a lot, especially cultured foods like yogurt and kefir (I was not vegan at that time, just veg. but I know they make vegan yogurt and probably vegan kefir too, which was about the only thing that I could consume to help keep food down).

Curious is your affecting your lower GI tract? Mine was mainly affecting my stomach and small intestine (which is why I've always questioned the diagnosis, since it is very rare to have upper GI crohns).

I am monitored on the vitamins too; that's how I know about the deficient vit D; but thankfully so far my nutrient deficicies have been minimal. Reading your post, I think I should be happy with that

And yeah, Crohn's affects the whole body and can be quite devastating as I have just proven. But with baby steps I'll get back in shape.

I hope you are continuing to feel stronger. When you get out of there and can, get some sunshine on your skin to absorb Vitamin D that way.

I am monitored on the vitamins too; that's how I know about the deficient vit D; but thankfully so far my nutrient deficicies have been minimal. Reading your post, I think I should be happy with that

And yeah, Crohn's affects the whole body and can be quite devastating as I have just proven. But with baby steps I'll get back in shape.

When my Crohns was at it's worst, I had to be on several injections (iron and b vitamins).

Interestingly, I was also suffering hypercalcemia (way too much calcium in the blood) and had to be put on massive doses of vitamin D (orally) to regulate the calcium. The hypercalciemia was actually worsening my nausea and vomiting.

It is very important for Crohns patients to be monitored for vitamin/mineral levels. It can do so many terrible things to the body beyond the GI tract. It is a truly horrendous disease.

fingers crossed your health and yes my mum is well (enough) she has never been back in hospital anyway

its not to bad. i am still alive and that all that matters.

hope you will better soon.

My vitamin D is low and has been low all this time, I'm taking supplements and medication for it but it's hard for my body to absorb. I might ask if injections are an option; it's something I will go after soon. Thank you for the suggestion

:O your mom is still here I hope? Good luck to you!

I'm glad my specialist doctor knew what was going on; because the ER doctor had sent me away on saturday saying that my lungs sounded OK so the breathlessnes sure wasn't a problem. Problem is, with an embolus the lungs sound normal; I'm very lucky that my specialist pressed them to hospitalize me anyway. He saved my life.

Good! That is a good improvement for your O2 needs! I'm glad your nurses are giving you the facts. Don't be afraid to ask for things while you're there. I know it must be so hard to have your world shrunken to a tray table and bedside commode. Good news is, you have gotten past the scariest part and just have to act 80 years old for a time. [emoji813] [emoji813]

i feel for you i had pulmonary embolism 3 years ago i am still on o2 .

I'm doing a little better today, I have been moved to regular care and I need a little less oxygen from my tank. I was on 5 and I have gone down to 2 now because my heartrate and oxygen saturation have consistently been lower than yesterday. It's between 120 and 130 bpm now as apposed to 140-150 so slowly things are improving.

I'm still bed bound though, the only thing I am allowed to do is step out of bed for the use of the bedpan chair. And my body reacts to that as if I am running a marathon. So all I do is draw, chat to visitors or on the web, and read little bits. I sleep a lot .

According to the nurses I will survive this if I pretend to be 80 years old, and so I will. For now, I will do almost nothing.

My vitamin D is low and has been low all this time, I'm taking supplements and medication for it but it's hard for my body to absorb. I might ask if injections are an option; it's something I will go after soon. Thank you for the suggestion

That's too bad. I hope things get better for you.

Are you aware of your vitamin D levels? Maintaining good vitamin D levels is beneficial for people with crohns disease.

Have you been tested for pernicious anemia? I'm sorry for asking but you know I have colitis,it caused PA. I had breathlessness and other complications. I'm on a facebook group for people with PA and you would not believe how many people on there have celiac, crohn's or colitis. Most doctors do not know enough about it, because it isn't really taught in med school. If you can give yourself injections then you are half way there. I give myself b12 shots and am so much better. Remicade blocks the obsorption of b12 and other important vitamins.

Oh my goodness! I am so glad you're ok, my mum has crohn's and she was hospitalised for the same reasons a few years ago (she ended up in hospital for about 9 months!) I wish doctors were able to figure these things out sooner.