I'm in pain all the time. This is hell. - VeggieBoards
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#1 Old 10-16-2016, 05:45 AM
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I'm in pain all the time. This is hell.

Since around the time I became vegan (early this year), I've been either throwing up, having diarrhoea, or getting stomach ache. Initially I would throw up etc. every couple of weeks or so. This stopped, thankfully, when I cut out gluten in June because I thought it was making me ill. I began having stomach ache most of the time after this, however, until I realised it correlated with having soy. Cut out soy, felt fine. Gluten free and soy free.

But, I stressed so much about going out to eat. Eating out is unavoidable sometimes. There wasn't really anything I could eat at restaurants that was vegan, gluten free, *and* soy free. There is often gluten free vegan options, and soy free vegan, but almost never both. A few days later, I decided to slowly reintroduce gluten. Magically, stomach ache came back. Went to see a registered dietician, she said I'm having a lot of fibre in my diet, which is likely the cause. High fibre diets can irritate IBS, which I suspect I may have (it runs in my family). I've looked into a low fibre vegan diet, but guess what the staple for low fibre vegan diets are? Tofu. The very thing that has given me so much stomach ache. The dietician suggested finding white bread instead of wholewheat, but I can't find any white bread that doesn't contain soy flour. I've also looked into a vegan low fodmap diet. Again, soy is a staple, plus it looks so restrictive, and I would be unable to eat my favourite curries at the local Indian takeaway because they contain onions.

I don't know what the hell I'm supposed to do. I'm tired of constantly being in pain, feeling sick, and wondering if I'm going to be ill again just because I want to enjoy my food.

Last edited by Ember Ruby; 10-16-2016 at 12:05 PM.
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#2 Old 10-16-2016, 09:23 AM
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Well, I really feel for you. Life just doesn't seem fair sometimes. I wish I could help but this is a bit beyond my level of expertise. Will have to wait and see if anyone else can help.
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#3 Old 10-16-2016, 01:43 PM
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Have you checked out this site:

https://glutenfreesoyfreevegan.wordpress.com/

Food For Life makes a gluten free soy free vegan bread. If you click on the "convenience food" tab on the above site, the author lists some commercial products that are both gluten free and soy free.

I have done gluten free soy free vegan for periods of time when my thyroid was getting out of control. It is not easy but it is not impossible. It does take some planning and it really is hard to eat out. Where I live there are fortunately several restaurants that offer gluten free soy free vegan entrees, but not many.

Smoothies and soups are probably going to be much easier on your stomach than other foods. Potatoes and sweet potatoes are also less high fiber than other grains, and white rice flour is easier on the stomach, though not the healthiest. I make a gluten free soy free vegan banana pancake that I swear is one of the best pancakes I have ever made. My family thinks so too, and I have made MANY different types of pancakes. Here is the recipe:

Banana Pancakes

1 c white rice flour
2 t baking powder
1/2 t salt
1 T sugar
a pinch of nutmeg and a bigger pinch of cinnamon
1 T veg oil
1 c plant milk or water
1 overripe banana

Mix all the dry ingredients. Mash the banana with the milk and oil, then add to flour mix. stir well to combine, and let sit about 5 minutes while you heat up your griddle (or cast iron pan, or pan, or whatever). Cook as you would pancakes, dropping about 1/4 c at a time and wiggling the pan to spread. Cook on each side, then spread with Nutella (or peanut butter, or syrup, or anything) and eat hot.


Cooking your vegetables, especially steaming, will help with digestion. Blending leafy greens and other vegetables and fruits in a smoothie will also break down some of the fiber for you.

Go easy on the beans until your body gets more used to them. It is very common to suffer some crampy gas when you introduce more beans, fruits and veggies and cut out lower fiber higher fat foods like meat and dairy and eggs. Focus more on nut based foods and recipes, and eat peanut butter or almond butter or sunflower butter etc, which all have a lower carb content. Soaking and then blending cashews with water and stuff like lemon juice or plant milk and spices etc can make some pretty awesome sauces, dips, and spreads. there are also commercial mayonnaise like Just Mayo that is both soy and gluten free. Most plant milks are, and juices. Daiya and SoDelicious both make soy free gluten free vegan yogurts. There is even a hemp milk yogurt out there now that is soy and gluten free.

I sometimes eat a simple breakfast consisting of a mashed banana, canned pumpkin, and peanut or almond butter. This would be a lower fiber breakfast that might not be so hard on your digestion.

Gluten free pastas like quinoa pasta or corn based pasta or brown rice pasta can also help keep fiber intake down a bit. That site in the link I provided has some sauce recipes you could add to the pasta.

I am one who rarely eats out, and I can attest that eating out always upsets my stomach, though low fat simple whole vegan food tends to be easier for me. I couldn't tolerate tofu for a long time when I first went vegan, and due to being on thyroid meds I could not consume soy too much, so I was soy free for a while. My Mom eats gluten free and I often make meals for her when I visit, and I had heard at one time that a gluten free diet might help thyroid issues, hence trying soy free gluten free. It really didn't make a lot of difference at all for me, except that my thyroid balanced out a bit. I was eventually able to start tolerating tofu when I started with sprouted tofu a little here and there. I still keep my soy intake down a lot, but I probably eat a lot of gluten now. I kept a notebook full of recipes for when I was in my gluten free soy free days, and it helped a lot to be able to plan and know what to eat. Eating out is harder but not impossible. Most restaurants will work with you at leaving out some ingredients or adding others.

As a last resort, raw veganism is totally soy and gluten free (though I have seen them rarely use miso), but the high fiber content might be an issue if you have IBS. I believe Kiwibird who used to post here cured her Crohns disease by going all raw.

You have my deepest empathy. I know digestive issues are not fun! I had endometriosis for years and it caused me to have terrible digestive isssues for a long time. For me, cutting out dairy really made a big difference. Sometimes it just takes a while to figure out what works. Don't give up! HUGS
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#4 Old 10-16-2016, 02:39 PM
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HI Ember Ruby,

The Registered Dietitian should be providing you with meal plans that are no-soy, no-wheat, and vegan. The RD should not expect you to do this work for them.

I would go back to your RD, make sure that they know all of your food restrictions and physical ailments, and then specifically ask them to make a meal plan for you. If the RD is too lazy to do this, then find a new RD.

A good RD should never leave their client not knowing what to do. The dietitian works for you, not vice versa.

Please keep in touch with us regarding this.
.

_________

Specific recommendations for a healthy diet include: eating more fruit, vegetables, legumes, nuts and grains; cutting down on salt, sugar and fats. It is also advisable to choose unsaturated fats, instead of saturated fats and towards the elimination of trans-fatty acids."
- United Nations' World Health Organization
http://www.who.int/topics/diet/en/

Last edited by David3; 10-16-2016 at 02:55 PM.
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#5 Old 10-16-2016, 03:00 PM
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Oh no. Have you been tested for Chrons or Celiac?

I only get really gassy if I eat too much processed food. You actually throw up?

Well you can try eating Buddha bowls with cooked vegetables and white rice, and tahini or other vegan dressing. Do beans bother you?

I guess if you go out to eat you'll have to insist on Indian, Thai or other Asian cuisine (and perhaps Middle Eastern or Mediterranean if you can handle chickpeas?)
That way it would be much easier for you to make choices that are vegan, gluten free and soy free.

If bread is your biggest problem, have you considered baking gluten free bread at home?

I hope you feel better and are still able to enjoy eating.

"Thinkers may prepare revolutions, but bandits must carry them out"~
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#6 Old 10-23-2016, 08:30 AM
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Gluten free and soy free is just too restrictive. I don't want to just eat a plate of vegetables whenever I have to eat out. And eating out is sometimes unavoidable.

I tried cutting down on fibre and vegetables. Energy has plummeted again, and I can't concentrate. Maybe I just need to focus on cooked vegetables, I don't know.

The dietician said she'd email back. She said I'm not getting enough calcium, and was going to give information about supplements. Didn't say anything about a meal plan. Hasn't emailed back yet, and it's already been over a week.

I used to throw up, but it's stopped now. I just get a lot of stomach ache and gas.

I don't even know what I'm supposed to eat anymore. I have no idea what's going to give me stomach ache, or if I'm going to start throwing up every week again.

I've been tested for coeliac disease, which came back negative, but I'm not sure about Crohn's.
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#7 Old 10-23-2016, 04:45 PM
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Many restaurants have baked potatoes or white rice. I like eating cut-up baked potatoes with plenty of ketchup. The restaurant should have a variety of simple sauces that are good with rice.

I'm sorry to hear that this dietitian is not providing sufficiently good service. I'm sure your dietitian is a nice person, but it's clear that they're not doing a good job. If you live near a larger city, it shouldn't take more than 15 minutes to find other dietitians near you. In the UK, you can find a local Registered Dietitian through the Association of British Dietitians: http://www.freelancedietitians.org/d...vate-practice/

In the meantime, there is nothing wrong with eating simple soy- and gluten-free foods like white rice, potatoes, corn tortillas, any of the various nuts (peanuts, walnuts, etc.) that you might enjoy. You can take a chewable multi-vitamin tablet to ensure that you're getting needed vitamins. Calcium can be obtained through calcium-fortified orange juice, calcium-fortified nut milks, and fruit-flavored calcium antacid tablets.
.

_________

Specific recommendations for a healthy diet include: eating more fruit, vegetables, legumes, nuts and grains; cutting down on salt, sugar and fats. It is also advisable to choose unsaturated fats, instead of saturated fats and towards the elimination of trans-fatty acids."
- United Nations' World Health Organization
http://www.who.int/topics/diet/en/

Last edited by David3; 10-23-2016 at 05:17 PM.
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#8 Old 10-24-2016, 11:03 AM
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Quote:
Originally Posted by Ember Ruby View Post
Gluten free and soy free is just too restrictive. I don't want to just eat a plate of vegetables whenever I have to eat out. And eating out is sometimes unavoidable.

I tried cutting down on fibre and vegetables. Energy has plummeted again, and I can't concentrate. Maybe I just need to focus on cooked vegetables, I don't know.

I used to throw up, but it's stopped now. I just get a lot of stomach ache and gas.

I don't even know what I'm supposed to eat anymore. I have no idea what's going to give me stomach ache, or if I'm going to start throwing up every week again.

I've been tested for coeliac disease, which came back negative, but I'm not sure about Crohn's.
Have you seen an Allergy specialist who specializes in EE, EGID, and other disorders that impact the intestine and throat? I would highly recommend, and get a EE test for as many of the foods you want to eat, as you can. Legumes, Green vegetables, watercrest, cos, any vegetable, nut, seed, fruit that you think is causing you grief should be apart of this test. They may start out with just a skin test, but I think what they really need to do is determine what is going on in the inside, as I am not convinced that a simple skin test is going to find what is really going on. They are going to want to do blood work. I do not know a lot about this, but it is my understanding that they can find out a lot by testing blood. This specialist will be able to determine if its Crones or not. And, if it is, a modified Paleo diet might maybe work. Personally, I think a elimination diet to determine which foods are causing grief is the only way to really determine what works for you - after the allergy specialist did what he can do to determine what foods work and don't work on his end. He will check out the throat and see what damage is there, and see if you have too many white blood cells.


Also, I've found in my case, 90 billion dose of pro-biotics, 6 tablets a day, really does help me digest more foods. I can now tolerate cooked Kale. I would still see the specialist first before doing any pro-biotics. And, I would bring in some food that you have reacted too in a future visit (after talking with him) to do a food test.
Best Wishes!


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