I was almost a goner this weekend - Page 2 - VeggieBoards
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#31 Old 09-04-2015, 08:59 PM
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My vitamin D is low and has been low all this time, I'm taking supplements and medication for it but it's hard for my body to absorb. I might ask if injections are an option; it's something I will go after soon. Thank you for the suggestion
When my Crohns was at it's worst, I had to be on several injections (iron and b vitamins).

Interestingly, I was also suffering hypercalcemia (way too much calcium in the blood) and had to be put on massive doses of vitamin D (orally) to regulate the calcium. The hypercalciemia was actually worsening my nausea and vomiting.

It is very important for Crohns patients to be monitored for vitamin/mineral levels. It can do so many terrible things to the body beyond the GI tract. It is a truly horrendous disease.
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Last edited by Kiwibird08; 09-04-2015 at 09:01 PM.
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#32 Old 09-04-2015, 10:30 PM
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fingers crossed your health and yes my mum is well (enough) she has never been back in hospital anyway
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its not to bad. i am still alive and that all that matters.

hope you will better soon.
Good to hear from you both! Glad you made it through

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#33 Old 09-04-2015, 10:36 PM
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Originally Posted by Kiwibird08 View Post
When my Crohns was at it's worst, I had to be on several injections (iron and b vitamins).

Interestingly, I was also suffering hypercalcemia (way too much calcium in the blood) and had to be put on massive doses of vitamin D (orally) to regulate the calcium. The hypercalciemia was actually worsening my nausea and vomiting.

It is very important for Crohns patients to be monitored for vitamin/mineral levels. It can do so many terrible things to the body beyond the GI tract. It is a truly horrendous disease.
I am monitored on the vitamins too; that's how I know about the deficient vit D; but thankfully so far my nutrient deficicies have been minimal. Reading your post, I think I should be happy with that

And yeah, Crohn's affects the whole body and can be quite devastating as I have just proven. But with baby steps I'll get back in shape.
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#34 Old 09-05-2015, 12:54 AM
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Originally Posted by Windigo View Post
I am monitored on the vitamins too; that's how I know about the deficient vit D; but thankfully so far my nutrient deficicies have been minimal. Reading your post, I think I should be happy with that

And yeah, Crohn's affects the whole body and can be quite devastating as I have just proven. But with baby steps I'll get back in shape.
I hope you are continuing to feel stronger. When you get out of there and can, get some sunshine on your skin to absorb Vitamin D that way.
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#35 Old 09-05-2015, 04:20 AM
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I hope you are continuing to feel stronger. When you get out of there and can, get some sunshine on your skin to absorb Vitamin D that way.
I look forward to that
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#36 Old 09-05-2015, 08:22 AM
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Originally Posted by Windigo View Post
I am monitored on the vitamins too; that's how I know about the deficient vit D; but thankfully so far my nutrient deficicies have been minimal. Reading your post, I think I should be happy with that

And yeah, Crohn's affects the whole body and can be quite devastating as I have just proven. But with baby steps I'll get back in shape.
Sounds like you have very competent doctors monitoring and treating you. Consider yourself*** LUCKY*** for that! It is so rare anymore to get competent doctors, especially when you're trying to get a serious disease under control. You are also lucky your nutritional issues are at a minimum at this point. Hopefully they can get it into remission before that changes. I think your plant based diet will help. Fermented/cultured foods and HSO/probiotic supplements also helped me a lot, especially cultured foods like yogurt and kefir (I was not vegan at that time, just veg. but I know they make vegan yogurt and probably vegan kefir too, which was about the only thing that I could consume to help keep food down).

Curious is your affecting your lower GI tract? Mine was mainly affecting my stomach and small intestine (which is why I've always questioned the diagnosis, since it is very rare to have upper GI crohns).
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Last edited by Kiwibird08; 09-05-2015 at 08:25 AM.
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#37 Old 09-07-2015, 04:51 AM
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Originally Posted by Kiwibird08 View Post
Sounds like you have very competent doctors monitoring and treating you. Consider yourself*** LUCKY*** for that! It is so rare anymore to get competent doctors, especially when you're trying to get a serious disease under control. You are also lucky your nutritional issues are at a minimum at this point. Hopefully they can get it into remission before that changes. I think your plant based diet will help. Fermented/cultured foods and HSO/probiotic supplements also helped me a lot, especially cultured foods like yogurt and kefir (I was not vegan at that time, just veg. but I know they make vegan yogurt and probably vegan kefir too, which was about the only thing that I could consume to help keep food down).

Curious is your affecting your lower GI tract? Mine was mainly affecting my stomach and small intestine (which is why I've always questioned the diagnosis, since it is very rare to have upper GI crohns).
I'm very blessed to live in a country with affordable, competent healthcare

I have got Crohn's Colitis (yes that is actually an official diagnosis sadly) which means that I've got Crohns that behaves mostly like Colitis. So most of the time the areas of Colitis are affected but sometimes I also get Crohn's active somewhere else. Right now Crohn's is active in the fat digestion area (sorry English is not my first language) and the rest of my bowels are calm. I'm not flaring, just a little bit of pain after each meal.

Going plant based has certainly helped me, due to prednisone my weight was up to a whopping 113 kilo's and since I went vegan three weeks ago I have lost 5 kilo's and am down to 108 while not excersising because I have been so ill. So when I get better and can excercise going vegan will certainly help me shed those darn pounds

Aside from that; good news all around. I am allowed to move again, I can stay without oxygen in the mornings and will get fysiotherapy. When I can climb stairs on my own again I will be allowed to go home.
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#38 Old 09-10-2015, 11:59 AM
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I'm back home!

I'm feeling way better than I have in months; it's incredible! The doctor said that as soon as the embolus is gone I should feel major improvement and it's true!

I can breathe, I can move, I don't need to sleep during the day! It's freaking amazing. I can live!

I'll take it slow, but if I keep feeling this way I am more than grateful
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#39 Old 09-10-2015, 12:06 PM
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What a horrifying experience. Nothing like a correct diagnosis to get you back on track. Feel better, Windigo!
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#40 Old 09-10-2015, 12:57 PM
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I'm so glad they caught that in time!

Crohn's is such a tough illness in so many ways.
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#41 Old 09-11-2015, 07:12 PM
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I'm glad you are better, @Windigo .
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#42 Old 04-02-2016, 07:20 AM
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Sorry for bumping this old thread ;

But I wanted to say thank you to all who supported me

And share the good news that I've finally found meds that help manage my Crohn's and I've been only improving for the past 3 months!

I have to be vegetarian still because of several serious nutrient deficiences; but otherwise I am doing well and slowly veganising things again.

Great to be back!
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#43 Old 04-02-2016, 05:57 PM
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I'm glad to know!
Do what you need to stay healthy, I'm glad you're feeling better!
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#44 Old 04-02-2016, 06:59 PM
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Good news...welcome back!


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#45 Old 04-02-2016, 07:49 PM
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Great news, Windigo!

You were amazingly cool and mentally sharp when you posted right after your crisis. Best of luck on your recovery.
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#46 Old 04-03-2016, 08:40 AM
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Originally Posted by veggie man View Post
Great news, Windigo!

You were amazingly cool and mentally sharp when you posted right after your crisis. Best of luck on your recovery.
I just really needed some support and you guys gave it to me

Thank you all for your help !

Recovery seems to be seriously getting there; and a veg* diet is really helping me too. Glad to be here again

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