Fibromyalgia - VeggieBoards
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#1 Old 10-10-2008, 06:19 PM
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I was finally diagnosed with Fibromyalgia yesterday. I have been exhausted, in pain and achy for years now. I was hoping to have something that was curable but oh well. I still need to go to a gastroenterologist for my stomach, constipation/diarrhea and GERD problems but I was wondering how those of you with Fibromyalgia deal with the pain? I haven't been to my Dr. yet but the specialist mentioned speaking to my doctor about Elavil (amitriptyline). Does anyone take this? What medications do you take? What sort of exercises do you do? Any suggestions?
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#2 Old 10-10-2008, 07:40 PM
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Vitamin D, even beyond what they normally recommend, has been shown to help with pain. Its believed that some fibro or neuropathy pain could possibly be attributed to bone softening (due to vit d deficiency).
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#3 Old 10-10-2008, 07:49 PM
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Quote:
Originally Posted by LucidAnne View Post

Vitamin D, even beyond what they normally recommend, has been shown to help with pain. Its believed that some fibro or neuropathy pain could possibly be attributed to bone softening (due to vit d deficiency).

Yes. I've read that magnesium deficiency can also be a factor.

www.thesaucyvegan.com
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#4 Old 10-13-2008, 09:36 AM
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there is a long thread several pages back. i'll bump it for you. lyrica and cymbalta have both been approved by the fda for fibro. there are a few others meds rx'd off label or for specific symptoms like non resotorative sleep. that is prob what the elavil is for, but it also helps some with pain. everyone is diff, but i didn't have a good experience with it. i gained ~15lbs. from carb cravings and it took a long time to wear off in the a.m. some people sleep very well with it, though, and there is a lot of room to increase the dosage if you need to. it's also not habit forming.



for exercise i stick with stretching, some yoga and walking. lots of people like swimming. in other words, low impact. your best bet is to find a dr knowledgeable about fibro.
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#5 Old 10-13-2008, 12:54 PM
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I took Cymbalta for 8 months for fibro. It worked like a charm on my symptoms, but I also gained 15 lbs. and it made me so sleepy I couldn't function so I came off of it. Unfortunately, the extra weight stayed with me.

I had been doing pilates every other day for three years, and the weird thing is, as soon as I stopped, my pain was less severe, which makes no sense to me. When I started up again, so did the pain. I can do aerobic activity with no problem. Very weird.
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#6 Old 10-13-2008, 04:49 PM
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Thanks again, eri!



That is weird. I really don't want to be on a medication that makes me gain weight. Did it make you hungry all the time or just kinda gained weight?
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#7 Old 10-14-2008, 04:53 AM
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For me, I don't recall eating more...after the first few pounds I was very much aware and even tried to cut back a little on my food consumption (I do love to eat). I was literally gaining about 2 pounds a week! I remember trying on a pair of new jeans that fit at Christmastime and three weeks later, they didn't fit anymore. It was very obvious I was gaining over the course of a few months.
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#8 Old 10-14-2008, 10:08 AM
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#9 Old 10-17-2008, 10:33 PM
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Originally Posted by karenlovessnow View Post

I had been doing pilates every other day for three years, and the weird thing is, as soon as I stopped, my pain was less severe, which makes no sense to me. When I started up again, so did the pain. I can do aerobic activity with no problem. Very weird.



have you tried doing more stability exercises, even a little free weights, *close* to the body?

i have had intermittent bouts of major body pain, at some points it was thought that i had fibro, and i recently, i had some serious pain again (after having a very stable bout). I had spoken to my chiro/ biocranial therapist, and she showed me that many of those exercises which involve extension, far from the body, can cause stress and tension in other weaker parts of the body. I tried her suggestions, and immediately, the pain was gone.



Basically, she suggested that i do my floor exercises that involved *really* isolating the stomach, leg or arm muscle that i was working on... and keeping the weight close w/in my body frame. (i hope that makes sense. lol)
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#10 Old 10-18-2008, 04:50 AM
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Thanks, I think I know exactly what you mean. I can certainly give that a try.
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#11 Old 10-26-2008, 09:38 PM
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We just had another thread going a few months ago. I'm on the FM boat too.
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#12 Old 10-27-2008, 10:36 PM
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It could be a sign of a magnesium deficiency. Considering about 80% of Americans are deficient in Magnesium and chronic pain is on the rise:

http://web.mit.edu/london/www/magnesium.html



Increase your consumption of raw foods and maybe even go high raw because it has been shown to help with chronic pain:

http://www.biomedcentral.com/1472-6882/1/7

http://www.ncbi.nlm.nih.gov/sites/en...t=AbstractPlus

however there are some little problems with these studies...one being that they were done on small groups of people, another is that many of the patients dropped out because I guess they couldn't go raw.



Rubbing Capsaicin (stuff in peppers that makes them hot) on the skin where your joints hurt can alleviate pain:

http://www.hss.edu/conditions_14305.asp



Also try eliminating common allergenic foods for a week or longer at a time to see if they spike an increase in joint pain. Wheat, soy, dairy...etc the common allergens can all worsen the symptoms of fibro.



Good luck!

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#13 Old 11-06-2008, 11:48 AM
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Hmm, I was taking a multivitamin but I should start taking one that includes minerals. I'm not sure if they checked me for a magnesium deficiency (probably not?) but all my blood tests regarding deficiencies came back fine.



I was waiting to hear back from my regular Dr. for a follow up appointment. I had gone to a rheumatologist who wrote a letter to my Dr. saying I had fibro etc. After 3 weeks I finally called my regular Dr. and he had gotten the letter but didn't call me back. I made an appointment and went the other day and he prescribed the Elavil. I'm going to get some today. Hopefully it helps.
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#14 Old 11-25-2008, 12:06 PM
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I've been taking the Elavil for nearly 3 weeks now. The first week I was only taking 10mg. It was helping me stay in a deeper sleep and I notice that I'm dreaming more (or remembering the dreams). At first I was taking it a couple hours before bed because it made me super sleepy after around 2 hours. Then, after a week it didn't seem to be doing much. So now I've been taking 20mg/day. I still feel exhausted when I wake up, though I think I'm getting into a deeper sleep and don't tend to wake up during the night (I am a VERY light sleeper, this seems to have eliminated that). But I am still in severe pain, today being even worse than usual. Guess I should make another Dr. appointment. How is everyone else doing?
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