Severe deterioration in ME condition - VeggieBoards
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#1 Old 06-26-2007, 07:53 AM
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Sorry to reach out on here, but my health has deteriorated so badly over the past few days that I'm now unable to even get around the house properly :-( and I feel so ill that I'm constantly bursting into tears.



I had to go for investigatory x-rays which involved four days of having to eat utter rubbish (white bread, custard, white pasta.....wasn't allowed any fruit or veg)...the fourth day I wasn't allowed any solids either (just jelly, yoghurt, etc....no veg soup or anything). It was extremely hard as I suffer from hypoglaecemia too (low blood sugar). I started to feel very nauseous and 'bunged up', then, as part of the pre x-ray treatment, had to take stuff to clear my system out.



It seems to have triggered a severe relapse in my ME, worse than I've been for some years now. I feel asthough I've got 'flu (head pains, aching all over, weakness, high level of nausea and am struggling to eat). I live on my own, so don't have any help (I have to look after my dog and cat too). My partner will be here on Friday evening until Sunday evening, but I won't see anyone until then.



Sorry to have a moan, it's just that it's kinda scary to feel so ill :-(
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#2 Old 06-26-2007, 08:00 AM
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what is ME?
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#3 Old 06-26-2007, 08:08 AM
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Sorry, it's Myalgic Encephalomyelitis. It's usually caused by a virus or trauma...the body kind of 'switches on' with 'flu-type symptoms, but doesn't switch off again. It can come and go to varying degrees. Some people recover, others stay 'switched on' for years, or indeed life.



Although I have it constantly, I can usually potter around, but sometimes things can trigger it fully and I can be housebound for months.
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#4 Old 06-26-2007, 08:12 AM
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that's really sad. i hope that you're not housebound for months.



i'm surprized that the hospital/doctors didn't work with you in regards to this, allowing you to choose foods that suit your specialized needs as not to trigger the ME.



what a bummer. i'm sorry that you're not feeling well.
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#5 Old 06-26-2007, 08:16 AM
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I'm sorry that you aren't feeling well. I hope that the doctors will be able to give you some relief.
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#6 Old 06-26-2007, 08:26 AM
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Thanks Zoebird and Chula. xxx



I think it's been triggered by a combination of both the lead up procedures to the test and the test itself. Unfortunately, ME isn't treatable with any type of medication.
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#7 Old 06-26-2007, 08:39 AM
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Sending you hugs! I have a friend with ME so i know how exhausting and frustrating it can be.



Take care.

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http://spidergrrlvstheworld.blogspot.com/****
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#8 Old 06-26-2007, 08:39 AM
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A close co-worker of mine was diagnosed with fibromyalgia (which I believe to be in the same category as ME) two months ago. She has had a very rough year. I know how debilitating it can be.



I've been worried about what the triggers are too. We work in the same environment. Unfortunately, in the last year she lost one of her children, so stress has overcome her. She also was bitten by a tick and was treated for Lyme disease because she had symptoms even though she tested negative.



I hope you can get some rest and that having your partner there this weekend will help.
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#9 Old 06-26-2007, 09:13 AM
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I'm sorry you're ill. If you sometimes can't leave the house, I hope you at least have someone (or several someones) to check in on you if they don't hear from you.

Peasant (1963-1972) and Fluffy (1970s?-1982- I think of you as 'Ambrose' now)- Your spirits outshone some humans I have known. Be happy forever.
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#10 Old 06-26-2007, 10:31 AM
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Thank you, Spidergrrl. xxx



Chula, yes, FM has got similar symptoms. ME tends to hit people who are caring and hard working (no couch potatoes). I can only say that, if you ever get a virus of any type, make sure you rest.....people who don't rest are more likely to develop it.



Thank you, Tom. xxx Unfortunately, I don't have anyone to check up on me. I have neighbours who will get me anything I need from the shops though, so at least I'm ok for food.





My partner has just contacted me to say that he's got a virus, so it looks like I have probably got it too (it's very hard to differentiate between a virus and a relapse). I think the rubbish diet may have lowered my immune system.



Thanks again everyone ((((((HUGS)))))).
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#11 Old 06-26-2007, 10:35 AM
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I am so sorry about your frustrating health condition.

I'm sending prayers that you'll feel better soon....



I'm not surprised that the hospital/doctors won't work with you concerning your diet. They are completely, utterly clueless when it comes to nutrition. It's one of the (if not the) biggest hole in our current health care system.
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#12 Old 06-26-2007, 10:45 AM
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Thank you for your prayers, Music Girl xxx
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#13 Old 06-26-2007, 11:14 AM
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I am not too familiar with this at all but I am so sorry you are going through it. It sounds awful. I hope you feel better soon.
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#14 Old 06-26-2007, 11:17 AM
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Thank you, Fadeaway xxx



I really appreciate everyone's good wishes....I can't express how much they've helped me get through the day. Thank you xxx
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#15 Old 06-26-2007, 11:38 AM
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This is a terrible illness. My heart goes out to you.



Have you ever considered trying to cure yourself through nutrition, and SPECIFICALLY a Raw Food diet?
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