The packet I left with had a bunch of "care grams" on how I should be eating, but they are all contradictory. One says eat a high fiber diet, the other says eat a low fiber diet. One says avoid whole grains and just eat white bread, the other says stick to whole grains.
I've googled it and come up with the specific carbohydrate diet, but it doesn't tell me a lot and the "intro diet" is full of meat and jello...no thanks!
I also go for an endoscopy later this month since I have reflux issues (which was mainly solved through cutting meat out of my diet, but I still don't consider it "normal" that I have to watch every little thing I put in my mouth!). He will biopsy there too, to check for celiac's (I've cut out gluten for several weeks with no change in symptoms).
Anyway, while waiting for these tests to be done I fell off the wagon a bit, but didn't seem to get any worse or better. I'm back on the wagon now (aside from falling off for a few months, I've been veg*n for over 2 years) and have been drinking green smoothies, doing fresh juice that I make at home, and just generally trying to get the fruits and veggies in. I've also started drinking one of those little goodbelly probiotic + multivitamin shots every day.
Does anyone know if diet really even helps, aside from avoiding known triggers (I haven't pinpointed any yet)?
The frustrating thing is that no diet plan seems to work for everyone. Avoiding your personal trigger foods is the key. I guess while awaiting the diagnosis and the suggested food plans, I would eat low fat, lightly spiced, lower sodium, cooked healthy foods. Chew well to aid digestion. Steamed veggies, applesauce, potatoes, whatever you can eat that doesn't bother your belly.
And meditation, yoga, long walks-take care of yourself. Hope you get this under control soon!
I would avoid the greens and fruit juice until you are sure how it affects you - greens like kale can make symptoms worse for some people, unfortunately. You can reintroduce them at a time when you're feeling better. Fruit juice can cause abdominal cramping for many people (with or without IBD). Plus raw fruits and veggies might carry E. coli and other nasty stuff -- the risk is small, but while you are still having severe symptoms it might be better to avoid that possibility.
If it turns out to be UC, VSL #3 is a good probiotic that has been well studied and shown to be effective. It is a lot more concentrated than your average probiotic.
I also assumed juicing would be a good way to get nutrients without too much insoluble fiber to tear me up...bad idea? Ugh. I don't want to stop eating well because of this! I LOVE my blender and juicer!!! *cries*
The weird thing about all of this is I have ZERO pain. Nothing "hurts" me, but I definitely have ulcers that are bleeding. I can eat anything (well besides straight dairy, like milk or ice cream...that will have me doubled over in cramps for hours) and not have any issues.
I already quit eating anything that is likely to not break down easily like corn, whole nuts and seeds, etc.
Overall, there is a huge lack of data about diet in IBD, so please take this with a grain of salt. Probably the best advice is food journaling. Hopefully you are on some medication that will start to work soon. I would imagine your biopsy results should be available within a few days as well, so you'll hopefully have some answers.
My boyfriend has Celiac - he doesn't necessarily feel an immediate change right after eating gluten. With Celiac you have to allow a gluten-free diet time to work in order to experience remission and it requires ABSOLUTE COMPLIANCE. Just wait for the biopsy results. I also have a colonoscopy coming up for suspected Crohn's. I hope everything goes well for you.
Hi, as someone who has been diagnosed before with crohns/colitis/ibs I highly recommend this book:
If it is crohns avoid salads and leafy greens in general. If you want them you need to juice them the fiber is way too harsh on your system. Other notable things to avoid dairy, gluten, fried stuff, sodas, candy. Just eat real foods. Sweet potatoes, yucca, ripped bananas, avocados and pretty much anything you can mash is helpful. Im sure there are other things but its escaped my mind right now.