I just got an email from a good friend of mine. Her 24 year old son is in the process of losing his battle with Cerebral Palsey. His bodily functions are shutting down, and his upper extremeties (sp?) are turning blue. This has been really rough on her and her family. She has an older son and a three year old daughter and a husband who suffers with severe depression. If anyone feels like it, Suzanne could use your prayers. Thanks.
This is really for Brendan's best. He has been suffering for so long. He has never been able to speak, and for the last couple of months, he has been sleeping for 22 hours a day. He has had pressure sores, and spent more time in the hospital and hospice than at home. I can't imagine how painful it must be to lose a child. I hope to God that I or anyone on this board will ever have to know.
This is really for Brendan's best. He has been suffering for so long. He has never been able to speak, and for the last couple of months, he has been sleeping for 22 hours a day. He has had pressure sores, and spent more time in the hospital and hospice than at home. I can't imagine how painful it must be to lose a child. I hope to God that I or anyone on this board will ever have to know.
The anniversary of my son's death is coming up on June 7th. I know how hard this is for your friend. If she needs to talk with someone who understands what she is going through, please feel free to contact me for my email address. Please let her know that she is in my thoughts, as only another mother can relate to what she is going through at this time.
The anniversary of my son's death is coming up on June 7th. I know how hard this is for your friend. If she needs to talk with someone who understands what she is going through, please feel free to contact me for my email address. Please let her know that she is in my thoughts, as only another mother can relate to what she is going through at this time.
I really dont like the sound of slowly shutting down, too reminiscent of things I feel about life already~ to feel blue is one thing, but to be colored blue?
wow...
*Sending benign (not fanciful) thoughts to uphold family moralle, hoping that any contingency/inevitable(?) loss is not measured in just pain or as futile suffering*
Are outcomes marginal as suggested to the point of there being nothing other than irreversible ill-fatedness in wait?.... saying that wasting by this disease is unstoppable?
This will sound callously honest to the truth (not intending full on to be) but is euthanasia a thing implicated in a thing like this, and would it be as wholly necessary as to be considered a possible option if pain really is so slow and so aweful bad....?
My prayers are with your friend and her family. This should remind us to cherish and love our family each day and never take any moment for granted when we have them.
This is very sad. I am glad to hear they are in touch with hospice who should be able to make the experience less difficult for the family and less unpleasant for Brendan. I wish his family well (whatever well can be in this situation).
PortableKitten- I had no idea. I am sorry you had to experience this as well.
I just got an email from a good friend of mine. Her 24 year old son is in the process of losing his battle with Cerebral Palsey. His bodily functions are shutting down, and his upper extremeties (sp?) are turning blue. This has been really rough on her and her family. She has an older son and a three year old daughter and a husband who suffers with severe depression. If anyone feels like it, Suzanne could use your prayers. Thanks.
This made me think of my friend from elementary school who has cerebral palsy. As a child, I never really understood how she was different from me, I never understood what it meant when people said "cerebral palsy." I read this post yesterday and thought and thought about her, and about Brendan.
I will pray for them. May they get through this difficult time.
Yes, hospice is a wonderful thing to have access to. They helped me alot with my dad in his final days and I hope they are as much of a help to this family.
Please, pass my condolences along to the family and his mom in particular. She is in my thoughts!
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